Workshop Description
Patient health records are retained for decades. GP records in England are kept for 10 years after death. Mental health records, 20 years after last contact. Paediatric records, until the patient turns 25. Genomic data, indefinitely. And genomic data is categorically different from other health data on one dimension: it cannot be anonymised. A DNA sequence is the unique identifier of the individual. NHS Genomics England's National Genomic Research Library holds over 110,000 clinically linked whole genomes. 23andMe's 2023 breach exposed 6.9 million individuals' genetic data. An adversary who harvests encrypted genomic sequences today and decrypts them in 2035 has not compromised historical records. They have compromised individuals who will still be alive, will still have living relatives, and whose genetic information will still be relevant to insurance, employment, and law enforcement.
This workshop helps information governance and security teams map their data retention obligations against cryptographic exposure windows, with a dedicated module on genomic data as a permanently non-anonymisable data class. The session covers GDPR Article 9 special category data obligations as they intersect with quantum cryptographic risk, GDPR Article 32 and Recital 83 (state of the art in security), NIS2 cryptographic requirements for essential entities, the NHS DSPT trajectory, and how to communicate quantum data risk to hospital boards and Caldicott Guardians. Participants leave with a remediation priority matrix that ranks datasets by sensitivity, retention period, permanent identifiability, and current encryption strength.
What participants cover
- HNDL attack model: timeline estimates from NCSC, ANSSI, BSI, and NIST for cryptographically relevant quantum computers
- Genomic data as a permanently identifiable data class: why standard anonymisation does not apply and what this means for HNDL risk
- NHS records retention schedule mapped to cryptographic exposure: which data categories face the longest risk window
- GDPR Article 9 special category data and Article 32 "state of the art": when does failure to adopt PQC become a compliance breach
- NIS2 essential entity obligations and the June 2025 ENISA implementing guideline recommending quantum-resistant algorithms
- Board communication: presenting quantum data risk to non-technical governance committees and Caldicott Guardians